In May 2009, shortly after the words ‘multiple sclerosis’ had first been mentioned, I was warned not to go home and read too much about it online. I would, no doubt, find countless horror stories, and pages and pages of conflicting information. I went home and got straight on the internet.
One of the first things I read was that it was important for people with MS to remain calm and positive, and to try and avoid stress wherever possible. What followed were details of a life destined for a steady decline, resulting in the need for a wheelchair, round the clock care and eventual death. I also unearthed a handful of personal blogs written by MS ‘sufferers’ who appeared to use the medium as a way of letting the world know just how unfair it was that they were in this position. Motivating stuff.
Having lived with MS for the last five years I have learned the following:
1. Everyone’s journey with MS is different.
2. The only expert in your MS is YOU.
3. You have to take responsiblity for your wellbeing – there is no magic pill.
4. If we want people to gain a better understanding of this condition, we need to share our experiences.
5. It ain’t the end of the world – life’s what you make it; MS or not.
So here beginneth the blog. If you’re in the position I was in back in May 2009, then I hope my take on things might help you feel that little bit more positive about the future. If you’re looking for a way of making cheap gin from lemons – sorry.
PS: Once you’ve had a look round here, please make this website your next port of call: http://www.overcomingmultiplesclerosis.org/