So why blog about MS?

In May 2009, shortly after the words ‘multiple sclerosis’ had first been mentioned, I was warned not to go home and read too much about it online.  I would, no doubt, find countless horror stories, and pages and pages of conflicting information.  I went home and got straight on the internet.

One of the first things I read was that it was important for people with MS to remain calm and positive, and to try and avoid stress wherever possible.  What followed were details of a life destined for a steady decline, resulting in the need for a wheelchair, round the clock care and eventual death.   I also unearthed a handful of personal blogs written by MS ‘sufferers’ who appeared to use the medium as a way of letting the world know just how unfair it was that they were in this position.  Motivating stuff.

Having lived with MS for the last five years I have learned the following:

1.  Everyone’s journey with MS is different.

2.  The only expert in your MS is YOU.

3.  You have to take responsiblity for your wellbeing – there is no magic pill.

4.  If we want people to gain a better understanding of this condition, we need to share our experiences.

5.  It ain’t the end of the world – life’s what you make it; MS or not.

So here beginneth the blog.  If you’re in the position I was in back in May 2009, then I hope my take on things might help you feel that little bit more positive about the future.  If you’re looking for a way of making cheap gin from lemons – sorry.

PS:  Once you’ve had a look round here, please make this website your next port of call:  http://www.overcomingmultiplesclerosis.org/

16 thoughts on “So why blog about MS?

    • That’s a really good outlook on what can sometimes be a massive trial. I’m pretty relaxed most of the time but occasionally lose my way…..wish i could be happy and relaxed all the time!! How do you do it?

      • Hi Mark.

        I think I am quite lucky in that I have always been a pretty positive person, but I also think we have the ability to ‘choose’ to be positive. A few years ago, prior to MS, I read Paul McKenna’s book, ‘Change Your Life in Seven Days’. It sounds like a rather far-fetched ‘miracle’ , but essentially McKenna teaches you how to re-programme your mindset. I’d recommend giving it a go – it’s not your usual ‘self help’ book.

        http://www.overcomingmultiplesclerosis.com is also a good positivity booster – full of supportive MSers who have a healthy outlook on the condition. Also, remember who you were before diagnosis. You are still the same person – don’t allow MS to change that.

  1. Congratulations, it is so important to be positive. People are often amazed at how positive I am but I honestly do not know any other way! Having three sons a job and older relatives, i cannot avoid stress but I tell everybody not to leave me out, I am still Catherine. I am lucky enough to have a wonderful husband and children and massive extended family. I also have fantastic friends. This has taught me all that. I am currently having a relapse, but that won’t last long. I may have ms but I am not going to let it have me!

    Catherine

  2. Congratulations to you, too, Catherine! MS doesn’t discriminate. I am single, so have no choice but to stay positive and look after myself, whereas you have the added pressure of looking after a family. But as we’ve both shown – it is possible! I am sure your current relapse will be short-lived. I wish you a positive and speedy recovery!

    Rachel

  3. Your attitude is amazing and uplifting!!
    I’ve grown up with someone very close to me having MS and wish that they would of have the same outlook and spirit as you do. Your an inspiration 🙂

    I am writing my dissertation on MS and was wondering whether It would be ok if I could email you a few questions which could later on be used within my dissertation.

    It would be brilliant if you could,

    Thanks a lot 🙂

    Joanna

  4. Hi! Its always nice to be positive in life 🙂 Im a physical therapy student from the philippines. We are to find and interview MS patients. I would like to know the whole story, from the first symptom, to visiting doctors, to being diagnosed by MS, up to now. I would really appreciate it. Thank you!

  5. I love your attitude, Rachel!
    I can relate to a lot of what you said in this post. It’s so important to get the good news out there, to counteract all the “doom and gloom” and innaccurate comments so prevalent in the media – and sometimes, the neurologist’s office…
    Keep doing what you’re doing! 🙂

  6. Wow! I clicked onto your story from the MS Trust website and was drawn to it as we are the same age, then when I saw the picture on your blog – the same one I have as my screen saver! – I knew I would be in agreement with your philosophy, and I wasn’t wrong. Thank you so much for sharing, and inspiring. I will look forward to reading more…

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